I cannot bring my my sweet mom back but I can inform people to beware before they commit to hospice. If you want to get notified by every reply to your post, please register. I can't believe I'm reading all these horrible posts about Hospice now. Her supervisor stopped by, showed us the proper way to deliver morphine (wed been doing it wrong) and told us a pain pump and a crisis nurse should arrive by noon. WebTo add to this case study pool, my mother (70) was killed by a UK hospice last week through the method of dehydration and starvation, made possible by use of an Caregiving For A Loved One? Hospice Killed My Father. | Cancer Treatment discussions | Body The hospice is permanently closed. Not Resuscitate: My Experience with Hospice She began to exhibit alarming side effects from her ever-increasing reliance on morphine. That was the end. As acceptance grows among physicians and patients, the numbers continue to balloon from 1.27 million patients in 2012 to 1.49 million in 2017. Two nurses came in and administered a sedative through her arm port. They made attempts to console me and made insensitive remarks one that nearly put me over the edge. My name is Kevi Bernier and I swear that this is the truth. The DEA states that it is responsible for (among many other responsibilities): She went over their Medicare-funded services, including weekly check-ins from a nurse and 24/7 emergency oversight by a doctor. This particular type of stress has even been given a name: caregiver syndrome. Most comfortingly, she told us if a final crisis came, such as severe pain or agitation, a registered nurse would stay in his room around the clock to treat him. This last 6 months big changes were happening and I began asking questions. 0n the way back to her house that day I told her how glad I was to see her so happy. Wed been on the phone quite a while when she asked if she could speak to mom. He does not have a terminal illness but is dying slowly from the stroke he suffered 11 years ago. Nov 4, 2022, 08:30 AM EDT The author with Dad on his 80th birthday, in the Chicago apartment where he died six years later. But I loved her, so of course Id support her wishes. We brought him to the ER, and they said he doesn't need surgery but he will be in pain for a while. I could never buy in. My dad finally woke up. Reporting from the frontiers of health and medicine, You've been selected! She ended up writing an essay about her frustrations with the way hospice care often works in the U.S. Johnston, like many family caregivers, was surprised that her mother's hospice provider left most of the physical work to her. Those decisive moments can be scary for the family, says Dr. Joan Teno, a physician and leading hospice researcher at Oregon Health and Science University. Her oncologist was optimistic that with hormone therapy-mom dismissed outright the possibility of chemotherapy after having seen her sister and mother both devastated by the treatments she could live another three or four years, with little side effects. Our youngest sister was also lost due to hospice and I dont know if hospice had her authorization neither. "We've done all we can, sorry." On the night before my dad passes away. My sister begins to administer morphine. At the end of life, things can fall apart quickly, and neither medical specialist nor hospice worker can guarantee a painless exit. And that really is the way I applied it to me; Youre okay as you are; how can I help you suffer less?. Only Ensure and juice. THEY WILL KILL THEM WITH MORPHINE. My aunt was helpless because my mom is the oldest and was in control and supports that whole "die with dignity" crap. Ultimately, even without pain relief, he was probably more comfortable in his own home, tended by his children, doing our best. Not everyone is ready to have a stranger in their home when their loved one is dying. My moms life was hers. She stopped talking by this time but was still engaged in every way. I again started noticing weigh loss. But we must take steps to prevent both the very human toll and the economic toll that hospice fraud takes. At my father's bedside, I learned what death looks like For the last six months my mom only ate when the non-hospice caregiver and I were there and was not given food while my siblings were there. The DEA also has the authority for: #100 WebMorphines reputation as a killer underscores one of the more persistent myths surrounding hospice care, namely, that it serves as a grey market euthanasia service for the I couldnt imagine watching my three young kids grow, graduate, fall in love and start families of their own without my mothers help and guidance. We were arrested in our front yard for a false charge that was latter dropped because I threatened to sue hospice. That same hospice woman and I remember her name well that same woman without our knowledge took our mom who was then 80 to the courthouse and she lied and said she was a family freind for years and that I was acting angry.And I was but not in a threatening manner. denied the funeral parlor Becker funeral parlor who also illegally cremated my mother suspicoulsy locked in her room in sunrise NO visitors allowed under the son and varnum ; cremated her NO abilyt ot view her remains NOW my fahter ND HIS priest reported how his wishes for a catholic viewong and mass priorr to cematoini ALSO I called the DOH dept of health wqhich was MY rioght thehy opened a case as " starrving my dad over dosing him and no eye glasses hearing aides such reported twice" the Lawyer wrote a letter DUE TO BRENDA calling the DEPT OF heath She upset the LEGAL counsel fo Valley hospice IN Paramus NJ the legal counsel and and the supervisor an RN joanna hanna : so NOW JOHN Sheehy my dad WILL HAVE NO VISITS as he clearly stasted " I DO NOT know why your father is dying .. dont care and also was stated to Father PAUL NO VISITS for JOHN : he needs ot die alone ; : SO HE DIEs alone NO ONE by his side with a sign over his heaD He was now unconscious due to medicatoins morphine and sedatives every 3.4 hours aide confirmed ; DO NOT FEED HIM ONLY HOSPICE MEDS SUNRISE also attaempted to haVe ME SIGN as this lawyer KNEw sign a " Euthanasia contract " IF YOU feed him or ask about his med YOU wil be asked ot leavE on JLY 9 i gaVe that to polkcie they wenet in for a safety check : THEY deny this ; well here is the contract the officer was kind that is when they started wiht laxative supposoitories all on record ' FROM jluy 5-19 that is what was DONE by a judge 3 lawyers hsi son colleen varnum adn hospice valley hospice who raged as recorded at me on phone just prior to july that july 3 and 4 and for a year MY DAD and I are chatting on phone laughing LOVE YOU BRENDA MISS YOU ; see you soon YES dad I will bring you food they were denying him food the sunrise lied and even attemtped to put him in a psych hospittal : it was so evil WE threatned to sue MY DAD was with his aides and i was outside of window he fell i heard it ; the lawyer wright robert and colleen varnum lied stated " as my dad is heard " I am ok ' and the aides pickiing him UP " they were oof site ' they wrote more lies " HE was in the hallway ( blind deaf using a walder cannot see as they refsued my pleas to JUST give me the scripto for his eye glasses nad his broken hearing aids i will pay and replace NO ) that my dad was in hallway beating up residents ; THE ENTIRE facilyt was ON LOCK DOWN NO ONE COULD LEAVE THEIR APT .. The new company was quickly on board. She collapsed into a foetal position, never awoke from this, and died exactly where she was 11 hours later. over a year ago, My father had NO hospice DIagnosis The Sunrise Assisted Living of OLD Tappan a NURSE illegally placed him on hospice YOU need 2 MD' His guardian ad litem That I asked to be hired TO protect him from the assisted living colleen varnum and his son Jack Sheehy that were " denying medical care hearign aides updated eye glasses and NO visitors IN assisted living " YET In 2 weeks the lawyer aligned suspicously with the SON: they removed his broken hearing aids his eye glasses all recorded and documented THEY cancelled MY dads need for GI bleeding only due to acid reflux " to go to a Gastro enterologist ordered by a MD DR SAEED in the hospital : so that my father BLED actively in sunrise of old tappan NJ for 10 days The lawyer ELTON bozanian ignored MY dads calls recorded for HELP ME I am bleeding help me : and I was finally able to get him to the hospital THE JUDGE was involved in NJ JJD " who also allowed his lawyer to abuse MY dad they then without any diagnosis and writted UP by an RN colleague of my dads eldest son: ON HOSPICE by a nurse warren Glick : VALLEY HOSPICE OF NJ left him with no abiliyt to see or hear ON lockdown for COVID but his calls ot me on a DIsabilyt phone i purchased for HI*M Each MONTH the judge deluca nd his ilawyer took on emore right from my dad hospice was illegally billing for hospice they began denying food AGAIN all recorded and documented by my former lawyer : sunrise with slander tried to sue me for harassment wiht perjury presented such case was DISMISSED wihotu prejudice YET colleen varnum continued to lie Thank God for witness and recordings : but it becmae horriied my alert oreinted fahte rthe JUDGE THEN after 5 monthsd decided to incapacitate HIM NO MD LEGAL IN ANY HOSPITLA OR OUTSIDE OF SUNRISE DEMMED HIM ANYTING BUT ALRT ORIENTED and " If you want to question his capacity " YOu better get him hearing aides and eye glasses " NO the judge and elton bozanian and ira kaplan and his son and sunrise lawyer wright and varnum refused THEY then all of a sudeen ON ONE DAY with NO diagnosis and being abused I recorded every day MY dad" HE IS DYING NO MD there OF WHAT " WE DO NOT KNOW " BUT HE IS NOT TO GET ANY FOOD OR WATER ROUND CLOCK MORPHINE ALONG WITH ATIVAN UNDER TONGUE " I called pplice and Dept of heatlh to sotp this i reporteded in court to the judge deluca and the lawyer doing this to my DAD who just prior to zoom court call was in my arms begging for help as i was aathere AND FOUND My fahter udner colleen varnum and her aide zelma edwards and hospice " HE was lying in his bed in approx 4 gallons of his own diarrhea what did you do " we gaVe him laxatives yesterday and today " YOU starved him for 7 days and then gave HIM Laxatives and morphine so he cannot even speak or stand UP"??? The solution may have to come from consumer advocacy and better regulation from Medicare itself. Your numbers look great, the doctor says, beaming at my father who is hunched in his wheelchair. Enough time has passed since then that the mental fog she experienced while managing his medication and bodily fluids mostly by herself has cleared, she says. She says that during the final weeks of her mother's life, she felt more like a tired nurse than a devoted daughter. I checked in again with John and Velez (Jean's long-time private caregiver) this winter. "So, our focus is building programs that help them be there.". Hospice just killed my father this week and I am still struggling with the grief and guilt of being coerced into putting him there. Bold faced lies! He came back and was fine. Exclusive analysis of biotech, pharma, and the life sciences. over a year ago, medic-dan109453 I ask them again about food and drink and get a response that I can't believe. The non-hospice caregiver remarked there was never any food for my mom to eat. Horrible, horrible place. Again, if your father was not eligible for hospice, it was his doctor who dropped the ball. MORPHINE is what they told us to give my dad. WebHospice care: the story of a mothers passing (Claremont Courier, March 2017) My sweet mom passed away January 8 at the relatively young age of 74. Actually, in the US, MOST Americans are overmedicated. Until last year, hey found my dad's cancer by Justice over a year ago Now my younger Brother is sick from a mysterious illness also and hospice wants him two. Hospice care: the story of a mothers passing, https://vnasocal.org/wp-content/uploads/2018/02/vnasc-logo.png, VNA Hospice & Palliative Care of Southern California, https://vnasocal.org/wp-content/uploads/2018/01/support-vnasc.jpg, Copyright All Rights Reserved | VNA Hospice & Palliative Care of Southern California 2018, Charitable Care Program Makes a Difference, Claremont Courier Talks with VNAs Dr. Dauwalder. Families rarely consider whether they're getting their money's worth because they're not paying for hospice services directly: Medicare gets the bills. A new Hospice team came in and my dad was DEAD in a few days after the last nurse left our home. Day Four, her final day, started at 9.00am with me being denied access to her room. They include suppositories, and so I had to do that," she says. I spent the next few minutes with my mom, holding her hand and talking to her. The cancer in her brain was gone, though according to oncologist, she still had cancer in her liver? I thought mom should want to have more time than just a year, and it seemed like such an easy thing to get. Its a beautiful place.. With the exception of a bad back, she was not suffering any other pain. She even tried to bite me. We needed a house call. " Enforcement of the provisions of the Controlled Substances Act as they pertain to the manufacture, distribution, and dispensing of legally produced controlled substances. " She was talking last night but the Hospice nurse gave morphine to a family member and is having them give so much every hour. She made many attempts over the years to woo me over to Gods way. John keeps his monthly statements from Medicare organized in a three-ring binder, but he had never noticed that his agency charges nearly $200 a day, whether there is a health provider in the home on that day or not. To sign off, I confirm that at no time did we request that my Mum be taken from us via this wicked and distressing form of euthanasia. So sad. A few high-profile advocates have even started questioning whether hospice is right for everybody. At its extreme, sepsis can also lead to dangerously low blood pressure. Hospice care is a lucrative business. I am so very glad that I did. My dad had Parkinson and experienced a urinary tract infection approximately 2 to 3 times a year. They ruined our lives and our Dads services were never given to him so that they could keep us from telling the truth to everyone. His primary nurse, who doubled as case worker, was kind and empathetic. I know it is in the law. "That was the lowest point. She said she didnt want anything other than to be comfortable and let nature take its course. How To Get The Help You Need. On Dec. 31, 2011, my sister and I took him to the hospital because he had an urinary tract infection. He wasn't ready to die. Again, in shock. I couldnt even promise hed find out who won the baking show that season. It was rough to hear my mom say she was done with this life. Her last days werent ideal. The misconception is that hospice leaves as So he has had to drain their retirement accounts to hire Velez, a private caregiver, out-of-pocket. My experience with Hospice has scared me tremendously. I feel Courtesy of Michelle Stacey Here, talk to your father, Carol says. That would be the last time my sweet mother was truly present with me. When Velez is not around, John McCasland Jean's husband of nearly 50 years is the person in charge at home. The Department of Health and Human Services Office of Inspector General, for which I work, recently published a report examining hospice practices over a decade. Prescriptions show up at the house for pain and anxiety. They will blame the disease and not the overmedicating, starvation and dehydration protocol. I've seen the dramatic changes on my dad once he started taking the morphine. I did find moments of joy. In my opinion, the ritual 20-25 minute exclusion from the patient's room each morning for nursing duties may carry a sinister, covert purpose, possibly involving moving the patient, creating stress and trauma, especially towards the end of their expected stay, presumably to encourage and speed their demise. "We really have to expand in general our approach to supporting caregivers," Ornstein says, noting that some countries outside the U.S. pay for a wider range and longer duration of home health services. That's exactly what happened with Teno's mother. I am an attorney and I am not through with this company and will pursue justice and try to prevent this from happening to others. "Your mom looks so peaceful and she looks exactly the way she did when she was alive", to that my 16 year old responded with, "but much much thinner". Jean McCasland's husband hasn't complained. my sweet mother passed under the care of hospice, my two siblings and a non-hospice caregiver. The non-hospice caregiver is dismissed from taking care of my mom. Coneigh Sea is a social worker from Murfreesboro, Tenn., who cared for her husband as he died on home hospice. In April, he fell again, this time in the bathroom. His pain was not terrible, so a low dose of oxycodone the only painkiller they gave us seemed to suffice. She agreed that this constituted a crisis and should trigger the promised round-the-clock care. Hospice Is Allowing My Father-In-Law hide caption. They also gave my mother peace of mind that her beloved husband was receiving kind attention in his final weeks. Shortly afterwards, the rest of my family arrived in the room. This was 8 years ago. Each morning, nurse's aide Karrie Velez pulverizes McCasland's medications in a pill crusher and mixes them into her breakfast yogurt. They gave him more morphine and he passed away. I was making plenty of crazy noise, but no assistance came from the medical team. This Was Not the Good Death We Were Promised, https://www.nytimes.com/2018/01/06/opinion/sunday/hospice-good-death.html, 4,000 Medicare-certified hospice agencies, National Hospice and Palliative Care Organization. It must be incredibly sad to live this way, I thought. As Christine started speaking, moms eyes opened wide, and she started talking. Sniffing Out Porkie Pies: Can You Tell If A Child Is Lying? Another aunt was at the hospital with him when he said, "I guess they [doctors] think they've done all they can for me." Her urine bag was dark and when I pointed this out to the nurse, she said "She's not dehydrated." The nurse did not come at 8 a.m. Or 9 a.m. Id always planned on moving into moms house when the time came. Thank you for that! They found he had some kind of pneumonia and was sent to another hospital for treatment for about 2-3 weeks. Hospice and the Death Cults of Modern Medicine My dad could do everything but walk. Hospice Killed My Father. Ontario, CA 91764. ---------- According to Medicare data, for-profit hospice agencies now outnumber the nonprofits that pioneered the service in the 1970s. MOST of our senior citizens are over medicated. Its a crushing burden, it would seem to me. His cancer was found way too late, but he was getting some kind of injections. Two days before she died, he learned that she had been enrolled in hospice more than a year earlier, a decision that an individual with dementia shouldnt make without assistance. Hospice Is Allowing My Father-In-Law To Die With Dignity Hospice. Mr. Banach told me hes worried that drawing attention to what he called the salacious stories of failed hospice care means more families will turn to less holistic, less humane end-of-life care. CMS now provides such information for nursing homes on its Nursing Home Compare website; a similar offering for hospice on Hospice Compare would help consumers make informed choices. Ten years later, it paid $16.7 billion for more than 1.4 million beneficiaries. The hospice nurse showed up only afterward, to officially document the death. I of course did not want to believe. Hospice killed my Another reason sepsis is so dangerous is that people who think they have beaten the illness often end up back in the hospital even weaker than before. But it was a burden. A typical dose would be to administer morphine IM about every 3-4 hours. "Coordination and cooperation with federal, state and local law enforcement officials on mutual drug enforcement efforts ." ". To add to this case study pool, my mother (70) was killed by a UK hospice last week through the method of dehydration and starvation, made possible by use of an intravenous morphine syringe driver and continuous injection of sedatives through an arm port. Granted, more than a million Medicare patients go into hospice care every year, so the complaints are in the minority. doctor gave me false hope I will admit to you that I was beside myself with terror and as I did this I sang to her, yes sang to her, one of her favourite songs, 'Ain't Misbehavin' by Fats Waller! Perhaps my Mum would have lived a few days, a few weeks or a few months more if she had not been killed in this artificial way, who knows, but it is my belief that, whilst we should use all the means at our disposal to ease suffering, only God (or mother nature if you don't share my faith) has the right to call time on a person's life and that we are entering dangerous territory when a medical professional has the power to make and effect such decisions themselves. To this day, she refers to those hospice workers as angels. "I think everybody wishes we could provide the sitter-service part of it," says Riggle. Also, the fact that he remains alive could simply be a "miracle?" Joanne M. Chiedi is the principal deputy inspector general for the Department of Health and Human Services. In the end, mom went quietly, in the middle of the night, in her home, with her dogs, a VNA nurse and me. A caretaker came three mornings a week to wash him and make breakfast. I am disgusted by the way they are getting away with this medical euthanasia and murder. During that hospital stay, my dad slept a lot and was prematurely put in Hospice. We offer competitive salaries and generous benefits package. But then I think: He deserved to have both. Such residences often resemble a nursing home, with private rooms where family and friends can come and go and with round-the-clock medical attention just down the hall. I was never in favor of hospice for her, I said that was "giving up". And she was present and fairly lucid and I got to tell her everything I wanted to tell her. Why are lay people trusted with the morphine/drug kits? It is a form of palliative care, which also focuses on pain management, but can be provided while a patient continues to seek a cure or receive treatments to prolong life. 8 months ago, Guest Some are signed up for hospice without their knowledge, including some individuals who are not terminally ill. John McCasland (right) of Goodlettsville, Tenn., hired a private caregiver to help with his wife, Jean (left), who suffered from dementia for eight years. In the bones is NOT where you want that cancer to have progressed. It's an evil act to not care for someone who wants and needs it and still wants every ounce of life they have left. Jonestown in slow motion is how one writer described Christian Science a reference to the apocalyptic cult where more than 900 people died in a mass But mom wasnt up for it. The cancer doc was taken aback, and revised her prognosis to a year. the nurses just do diagnosis over the phone. Shocked by this the caregiver and I would bring food. Maybe all is not lost! One more thing, maybe two! Like many Americans, I have a story about hospice care for a loved one. Quite often its not what you would hope or envision.. Like a growing share of hospice patients, McCasland has dementia. I took him home around the 8th day, where he received hospice care for over 2 1/2 years before his death. I was in tears. life expectancy of a patient with chronic obstructive pulmonary disease. For more information and to view the latest job postings go to jobs.vnasocal.org. She sat down in her wheelchair, ate a home-cooked Christmas dinner and smiled, laughed and enjoyed herself. Blake Farmer's reporting on end-of-life care is part of a reporting fellowship on health care performance, sponsored by the Association of Health Care Journalists and supported by the Commonwealth Fund. Growth in the use of hospice makes it even more important to take action now. A friendly volunteer met us at the doors and filled us with confidence. My dad was also KILLED BY HOSPICE/MORPHINE. The idea that hospice care could abuse and neglect patients when they are at their most vulnerable, or exploit them for unjust enrichment, is repellent. Hospice killed my mom Constipation plagues many dying patients. We ended up getting five months. Earlier this year the doctor who sees the patient once a month decided she had to go into hospice since she only had 3 6 month to live. Also, I began taking VNA up on that 24/7 promise they had made. He wanted CARE, not to be discarded. My siblings decided to take care of our mom. She made a phone call and told us the crisis nurse would arrive by 8 a.m. My mom at this point no longer resembles herself. When a doctor said my father had about six months to live, I invited a hospice representative to my parents kitchen table. Jean died in October after 13 months on home hospice. Sue Riggle is the administrator for the McCaslands' hospice agency and says she understands how much help patients with dementia need. In a North Texas case, nurses allegedly gave high doses of drugs such as morphine, regardless of whether patients needed it, to justify receiving the higher hospice payments. Last year she was put into hospice and I still am not sure why.
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